I was so determined to keep this blog going and up to date....oops!
We have had a busy busy month.
We took a 10 day trip to FL, continued working with the case worker and ST for Brady, managed play dates with pre-school and other errands of necessity, dealt with a few illnesses and recently toured a farm with Llamas and Great Pyrenees rescue dogs. It has been a full month.
Josey graduates from pre-school on Thursday the 27th. From what I understand there will be graduate caps and tassels....and probably tears. I am not sad so much that she is graduating but amazed to see her growing before my very eyes. She is such a sweet thoughtful girl who can also be headstrong and difficult. I love her fierce independence, or try to anyway since I hope it will serve her well as she gets older and has to be strong enough to maintain her values despite peer pressure. I know I may sound a little silly but we all know that happens way earlier these days...She starts Kindergarten in the fall and she is thrilled. She is still the craftiest little thing and almost always makes stuff for friends and family before herself. I love that about her.
Lucey is growing into a little bit of an attitude. She is a middle child through and through. She works to make sure that she gets attention and is heard. Trust me on that one...she IS heard. *wink wink* She loves animals, as do the other kiddos, and when we toured the farm last week she was excited to see the goats, llamas and dogs. If I could have bottled her giggle and squeals of delight while she played with them I would have. She is a joy, when she wants to be. Fits are her latest "thing" and they never cease to frustrate me. She is loud I tell ya....L-O-U-D!
Brady is coming along in leaps and bounds. He is picking up new words here and there. I think that the GF/CF diet is helping him quite a bit, seems to anyway. We are meeting with an OT next week to discuss some sensory issues he seems to have, we'll see how that goes. He was right in there with the girls feeding the goats last week. Petting the llamas and chasing cats. He enjoys being outside and is in love with a tractor I bought at a garage sale a year or so ago. Too bad it does not currently run....we are looking for a new battery for it. Otherwise he enjoys riding the bajillion other toys we have. He likes to water the plants too.
Here is a list of words for him currently. I will copy and paste his old list and use an asterisk(*) to note new words. Parentheses( ) indicate how he actually says the word. I am not sure that this is terribly important except that some words are much more clear these days so I think I like these phonetic notes to compare to later. Also of note is that some of these words are used and noted during ST or work with the CW but not necessarily used on a day to day basis.
mom
daddy
sissy
no
uppy (ut-ee)
shoes (sooes)
fish (feesh)
drink
night (nigh)
bye (die)
baby
eat
cheese(he does not use this one anymore since he does not get cheese)
more(he is trying so hard to enunciate this word anymore. it is precious)
please (pease)
cookie* (oo-kie)
butt*
moon* (oon)
bubble*
apple*
car* (ar)
me* ( while pointing to his chest. it is adorable!)
Oscar* (us-ar) This is our dog's name.
boat*
pillow* (i-ow) Basically pillow without the "p" and the "ll". He is extremely attached to a pillow.
banana* (na-a)
uh-oh*
bug* (ug)
sit* (zit)
I think that is it. I am pretty sure. His speech is still pretty limited. He is trying. We will look at his progress again in August and then October and decide what more the AEA can do with/for him at that time. The two basic choices will be either speech groups, which meet 3 times a month for about half an hour, or 3yo pre-school which would meet Mon-Thurs for 3 hours daily. We go to the University of Iowa on June 8 for his evaluation with the CDD down there. Until then we are still working weekly with the case worker or ST on alternating weeks. He is a very affectionate little guy when he wants to be too. Every night before going to bed he tells us all "nigh" and gives hugs.
That has us all caught up I am pretty sure. Later I will upload some pictures to share with you all of our vacation and the farm tour.
Showing posts with label kindergarten. Show all posts
Showing posts with label kindergarten. Show all posts
May 25, 2010
March 4, 2010
ahhh...my children
this post is from a previous blog, posted yesterday(March3,2010)
more on that in another March 4 post to come
I am a mom therefore I worry. or something like that.
I love my children. all three of them. they are the joy and the frustration of my days. They are my job.
Josey will be starting Kindergarten next fall. I am not sure why I use capital letters on Kindergarten except that it feels like that…it feels all proper and important. And big. Really really big. It has been a fast 5 years. She is doing well. Loving preschool and the friends she makes there. I just got a reminder call from the University where she had her cranio surgery at 4 months old and it is time for a re-check. in the earlier days I was calling to schedule these appts. and this time I was a little surprised. She is doing so well that some days you can almost forget she ever had her skull reconstructed so young. Almost…quite a bit happened around that time and although she is healed and well I can seldom talk about the surgery without crying. Not all out sobbing or anything. Just tears of a mom who feels incredibly lucky to have come through something like that with her kiddo intact and healthy. Sometimes I wonder if all that oxygen her brain was exposed to did something to it…like accelerate growth. She is smarter than I am I think on some days.
Lucey…techinically our second born since she was the first twin out of the gate. She is only a minute older than her brother but I am fairly certain that will be a detail she will not let him forget as they get older. She is talking all.the.time. these days. She ask about things. Lets us know when she “toots” or “poops”(for the most part). She loves to play with her big sister. She still sleeps with a paci, known as “paa-ie”, but knows when she gets up she needs to hand it over. Lucey eats just about anything and everything. No exaggeration…no lie. She is an awesome eater. She loves our boxer Oscar and lays with him while he is sleeping. The cat is also intriguing to her, she loves the sounds he makes when she pulls his tail. *small chuckle* We are working on teaching nice touches.
Brady…my youngest and only boy. ahh Brady. I was so scared to have a little boy. I did not think I would know what to do with him. I am here to tell you that little guy came out holding my heart in his hands. I love my girls but there is just something different about a boy and a mom. He is all over this house these days. He is active and moving. He LOVES cars. LOVES them. The movie, the toys…anything with wheels. He has a couple larger ones that he leans on and just pushes all over the house. Full of energy and love.
It is him I am worried about right now. It is Brady that consumes my thoughts and fears right now. He is not talking. Please understand when I say not talking I mean it literally. I don’t mean that he is hard to understand or that he is not talking as much as other kids. I don’t mean that he does not want to talk and so is choosing to be silent or that he gets everything handed to him so he does not have to talk. He really does not seem to be able to form words.
I called Early Intervention in our area 2 weeks ago. We met with them for the first time last Tuesday, Feb 23. The case worker was very nice and spent about an hour and a half here that morning. She did some developmental tests with him to see where he was at, she did say she would score him another time as well to make sure to get a more complete view of him. He scored very low in communication skills; at 27 months he scored at a 16 month level. Have you any idea how hard that is? To hear that your child is almost a year behind where he should be. He was behind in all other areas as well. He basically scored between 16 and 20 months.
A speech language pathologist, SLP, is coming this Friday, March 5, to meet with us and evaluate him as well. Where we go from there I am not real sure. She also bringing a test that will alert us to any red flags of autism spectrum disorders, ASD. again…kind of scary. I will blog more about my own thoughts on my other blog.
I am eager to meet with these professionals and move on to whatever the next steps are. I am so happy to have Brad to walk this with me. He is a wonderful person to lean on. I am grateful to be able to check things with him as well and watch him watching Brady. I know that whatever comes of all this we can walk this together. We always have been able to walk these tough roads together.
Well…smells like I need to get back to work. The girls have been playing for a little bit after getting up from nap and I believe that Lucey has made a lovely package for me in her diaper…oh the joys.
more on that in another March 4 post to come
I am a mom therefore I worry. or something like that.
I love my children. all three of them. they are the joy and the frustration of my days. They are my job.
Josey will be starting Kindergarten next fall. I am not sure why I use capital letters on Kindergarten except that it feels like that…it feels all proper and important. And big. Really really big. It has been a fast 5 years. She is doing well. Loving preschool and the friends she makes there. I just got a reminder call from the University where she had her cranio surgery at 4 months old and it is time for a re-check. in the earlier days I was calling to schedule these appts. and this time I was a little surprised. She is doing so well that some days you can almost forget she ever had her skull reconstructed so young. Almost…quite a bit happened around that time and although she is healed and well I can seldom talk about the surgery without crying. Not all out sobbing or anything. Just tears of a mom who feels incredibly lucky to have come through something like that with her kiddo intact and healthy. Sometimes I wonder if all that oxygen her brain was exposed to did something to it…like accelerate growth. She is smarter than I am I think on some days.
Lucey…techinically our second born since she was the first twin out of the gate. She is only a minute older than her brother but I am fairly certain that will be a detail she will not let him forget as they get older. She is talking all.the.time. these days. She ask about things. Lets us know when she “toots” or “poops”(for the most part). She loves to play with her big sister. She still sleeps with a paci, known as “paa-ie”, but knows when she gets up she needs to hand it over. Lucey eats just about anything and everything. No exaggeration…no lie. She is an awesome eater. She loves our boxer Oscar and lays with him while he is sleeping. The cat is also intriguing to her, she loves the sounds he makes when she pulls his tail. *small chuckle* We are working on teaching nice touches.
Brady…my youngest and only boy. ahh Brady. I was so scared to have a little boy. I did not think I would know what to do with him. I am here to tell you that little guy came out holding my heart in his hands. I love my girls but there is just something different about a boy and a mom. He is all over this house these days. He is active and moving. He LOVES cars. LOVES them. The movie, the toys…anything with wheels. He has a couple larger ones that he leans on and just pushes all over the house. Full of energy and love.
It is him I am worried about right now. It is Brady that consumes my thoughts and fears right now. He is not talking. Please understand when I say not talking I mean it literally. I don’t mean that he is hard to understand or that he is not talking as much as other kids. I don’t mean that he does not want to talk and so is choosing to be silent or that he gets everything handed to him so he does not have to talk. He really does not seem to be able to form words.
I called Early Intervention in our area 2 weeks ago. We met with them for the first time last Tuesday, Feb 23. The case worker was very nice and spent about an hour and a half here that morning. She did some developmental tests with him to see where he was at, she did say she would score him another time as well to make sure to get a more complete view of him. He scored very low in communication skills; at 27 months he scored at a 16 month level. Have you any idea how hard that is? To hear that your child is almost a year behind where he should be. He was behind in all other areas as well. He basically scored between 16 and 20 months.
A speech language pathologist, SLP, is coming this Friday, March 5, to meet with us and evaluate him as well. Where we go from there I am not real sure. She also bringing a test that will alert us to any red flags of autism spectrum disorders, ASD. again…kind of scary. I will blog more about my own thoughts on my other blog.
I am eager to meet with these professionals and move on to whatever the next steps are. I am so happy to have Brad to walk this with me. He is a wonderful person to lean on. I am grateful to be able to check things with him as well and watch him watching Brady. I know that whatever comes of all this we can walk this together. We always have been able to walk these tough roads together.
Well…smells like I need to get back to work. The girls have been playing for a little bit after getting up from nap and I believe that Lucey has made a lovely package for me in her diaper…oh the joys.
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