Brady had his evaluation today at the University.
I am putting the short story here so that I can quickly pass the info along to everyone who is kind enough to be wondering. We are all tired. The girls missed us and are beat after playing with friends all day. Brady and I took a short nap before we picked the girls up but are still beat. Brad is back at work but I am pretty sure he too is beat. The day was a long and exhausting one with a positive ending however.
We left with a diagnosis of severe speech delay and sensory processing disorder. They were reluctant to give him an ASD diagnosis. They felt that had they seen him a few months ago that probably would have been the case but he seems to be making great strides in his pretend play and socialization and various other areas of concern so they really feel that with continued work he will catch up. They will see him again in a year just to make sure he is still on track.
I am happy with this information. Funny because it is pretty much what thought/hoped for in some ways. Yes there are areas of concern but he really seems to be doing better so let's just keep doing what we are doing and watch to make sure he keeps it up.
Thanks for all the thoughts....it means a lot. I have to go start dinner now...the natives are restless. I will be back sometime soon for a little more on the story.
Showing posts with label ASD. Show all posts
Showing posts with label ASD. Show all posts
June 8, 2010
March 20, 2010
Me!
So yesterday was Brady's appt. with the SLP, "S".
I took the girls to a friends house which proceeded to throw Brady into a terrible meltdown. It was awful. We got back home, they are only about 5 minutes away, and he cried until S showed up. I was worried he would not be able to get past it and be able to have his therapy but he did.
What an awesome job he did too! He was being very social with her. Some of the things he did that just excited the hell out of me...
1. he was taking turns sharing bubbles with S. Brady would hold the wand out for her to blow a bubble and then he would just giggle and giggle at her attempt. This is awesome stuff. I started crying watching him.
2. tear jerker number two...in the process of them taking turns she started modeling for him to touch his chest and say "me" when asked who wanted a turn. He did it a few times with prompting and then started to spontaneously answer that way. I seriously started to cry. I was so happy to see and hear him trying and learning. His me was not super perfect but damn he sure was trying.
Overall it was a great session and I was thrilled with him. He was trying. and he was just Brady and man I love that kid!
I did talk to her some about his sensory issues. Here is the deal...he has started toe walking. every few days or so. He also spins and will stand with his head on the ground and look at things upside down. S has noticed he is very aversive to having his mouth touched or hands near his face in general and there are some other sensory red flags. The oh-so-tricky thing is that ASD-sensory issues-speech delays-neuro symptoms-hearing and such...all of these things are linked. in a complicated way. At his age it is hard to say for sure if it is ASD, sensory integration problems, dyspraxia or other language disorders. again...this is my understanding.
I asked S about getting him into OT and she said it could be helpful, it is hard to predict. I am not too sure that our insurance would cover it without a diagnosis and we have to wait until June to get into the University for testing so we will wait on the OT until then.
The tough part of the ST is the wait. Brady saying "me" is huge for him. wait..not just saying "me" but understanding that he is "me", that is the huge part. Overall though it is a small step of a long journey. I am trying my best to just enjoy this journey, as I try with any other journey I am on, but there are times when I cannot help but want to speed things up and just hear him "talk". Soon enough I hope...soon enough.
So here is a funny for you guys...my husband is king of teaching the kids mildly inapprpriate things. Mostly these things are not what I would teach but they are funny. So this morning I go in to change diapers and he picks up the book 101 Dalmations. He points to the female character and asks Lucey what that is. I am expecting her to say dog or maybe even dalmation. nope.
"Beach" she says. it takes me a minute. I think about it and then shoot Brad a mildly scathing look.
"Did you teach her to call that dog a 'bitch'?" I ask him under my breath.
He sheepishly grins at me, the look that one makes when they know they are "in trouble", and says, "I told her that was a bitch and that one(the male) is a stud."
I wanted to be mad but first off...those terms are right, not what I would teach my 2 year old necessarily, but accurate. Secondly it was beyond adorable to hear her say it.
Right now she has no idea what she is saying and it will now fade from memory. I think for both of us to push her verbal skills to their limits is just where we are at. Making sure she is ok where she is since B is working so hard to catch up.
ah...a glimpse of the household in which we live.
I took the girls to a friends house which proceeded to throw Brady into a terrible meltdown. It was awful. We got back home, they are only about 5 minutes away, and he cried until S showed up. I was worried he would not be able to get past it and be able to have his therapy but he did.
What an awesome job he did too! He was being very social with her. Some of the things he did that just excited the hell out of me...
1. he was taking turns sharing bubbles with S. Brady would hold the wand out for her to blow a bubble and then he would just giggle and giggle at her attempt. This is awesome stuff. I started crying watching him.
2. tear jerker number two...in the process of them taking turns she started modeling for him to touch his chest and say "me" when asked who wanted a turn. He did it a few times with prompting and then started to spontaneously answer that way. I seriously started to cry. I was so happy to see and hear him trying and learning. His me was not super perfect but damn he sure was trying.
Overall it was a great session and I was thrilled with him. He was trying. and he was just Brady and man I love that kid!
I did talk to her some about his sensory issues. Here is the deal...he has started toe walking. every few days or so. He also spins and will stand with his head on the ground and look at things upside down. S has noticed he is very aversive to having his mouth touched or hands near his face in general and there are some other sensory red flags. The oh-so-tricky thing is that ASD-sensory issues-speech delays-neuro symptoms-hearing and such...all of these things are linked. in a complicated way. At his age it is hard to say for sure if it is ASD, sensory integration problems, dyspraxia or other language disorders. again...this is my understanding.
I asked S about getting him into OT and she said it could be helpful, it is hard to predict. I am not too sure that our insurance would cover it without a diagnosis and we have to wait until June to get into the University for testing so we will wait on the OT until then.
The tough part of the ST is the wait. Brady saying "me" is huge for him. wait..not just saying "me" but understanding that he is "me", that is the huge part. Overall though it is a small step of a long journey. I am trying my best to just enjoy this journey, as I try with any other journey I am on, but there are times when I cannot help but want to speed things up and just hear him "talk". Soon enough I hope...soon enough.
So here is a funny for you guys...my husband is king of teaching the kids mildly inapprpriate things. Mostly these things are not what I would teach but they are funny. So this morning I go in to change diapers and he picks up the book 101 Dalmations. He points to the female character and asks Lucey what that is. I am expecting her to say dog or maybe even dalmation. nope.
"Beach" she says. it takes me a minute. I think about it and then shoot Brad a mildly scathing look.
"Did you teach her to call that dog a 'bitch'?" I ask him under my breath.
He sheepishly grins at me, the look that one makes when they know they are "in trouble", and says, "I told her that was a bitch and that one(the male) is a stud."
I wanted to be mad but first off...those terms are right, not what I would teach my 2 year old necessarily, but accurate. Secondly it was beyond adorable to hear her say it.
Right now she has no idea what she is saying and it will now fade from memory. I think for both of us to push her verbal skills to their limits is just where we are at. Making sure she is ok where she is since B is working so hard to catch up.
ah...a glimpse of the household in which we live.
March 7, 2010
Brady
I am tired. Let me tell you straight up...I am tired. I have looked at the things that were said to me on Friday backwards and forwards and sideways too. I am overloaded with what to do. As a mom, for me anyway, it is always hard to make decisions about my kids because I am consumed with the fear that I will make the wrong decision. In this situation I will tell you that I am not overall a religious person but I do consider myself to be spiritual and I will pray for the faith I need to know that Brady is in good hands...whatever we decide to do.
He was evaluated by the SLP, with the case worker here again, on Friday. He was verbally at about a 15-16 month level. Cognitively, what he understands, was at about 19 months though. While this is still considerably behind where he should be it is good that he understands more than he says. That means we can catch him up, hopefully.
He also failed his MCHAT. This is not a diagnostic test for autism or ASD but it can be indicative of red flags. Failing means he had the red flags that indicate there may be something wrong. wow. I expected it but was still reeling a bit.
At this point in time I think we are going to wait to have him evaluated further. I am going to copy and paste an email I sent to friends for further explanation. sorry but I have not got the energy to type it all out again.
ok. the reason we will probably wait to have him evaluated is that they wonder if the fact that his speech is so delayed perhaps he "looks" worse than he really is. and perhaps some of the other more autistic behaviors are influenced by his lack of communication. does that make sense?
He would have to be evaluated by the university. You have to have an MD diagnose specifically PDD and probably the other conditions as well. I know, from speaking with the U already, that he would be seen by a developmental pediatrician and speech pathologist at the least. He would probably also be seen by a neurologist and potentially have a pysch eval as well.
there are specific therapies for autistic children. We will be working with some of the more troublesome developmental issues with the case worker. They are fine with me having him evaluated. they did not tell me not to. they just said that perhaps if we wait a bit then he may catch on to some of these things without needing the diagnosis. Obviously, as I am sure you can figure out, a diagnosis is a double edged sword. can be good...can be bad.
I think that it seems reasonable, for now, to allow him a couple more months to work on his speech and see where things go. They will reevaluate him in June to see where he is at and whether or not he would qualify for more help after turning three, since that is when EI ends and he would need to be turned over to the school system for early preschool or something of that sort. I will set up appts at the U for June as well. that way if he is not where he needs to be. or if I still have my concerns then we can get him in there to be evaluated.
I will be honest and tell you that for the most part I am ok with this, but part of me wants to whisk him away immediately and get a DX. part of me worries that I am doing him more harm by not getting him right in to get him evaluated....but that part of me is about as big as the part of me that worries about a dx following him around.
If he is on the spectrum he is obviously very high functioning thing is though that he could possibly eventually function high enough to barely register the spectrum if that makes any sense. I had, up until recently, only shared my concerns with Brad. and no one else. not even my mom. because I wondered if perhaps I was over thinking things. but I have had concerns for a few months now. if I see any of his symptoms or behaviors seeming to become worse or more pronounced I will also be getting him in earlier.
again...sorry for just copying and pasting but I am just too tired to try to type it again.
I am keeping a log of odd behaviors and other troubling stuff. I think I will also start trying to get little videos when I can of the things that worry me.
I am hoping that with the SLP and the case worker helping me out we can start to see some improvements even without an immediate diagnosis.
We will also begin feeding him a gluten free diet, which means we are all going GF since Josey is already.
ok....off to play with the littles. I will update my own blog later once the kids are in bed.
He was evaluated by the SLP, with the case worker here again, on Friday. He was verbally at about a 15-16 month level. Cognitively, what he understands, was at about 19 months though. While this is still considerably behind where he should be it is good that he understands more than he says. That means we can catch him up, hopefully.
He also failed his MCHAT. This is not a diagnostic test for autism or ASD but it can be indicative of red flags. Failing means he had the red flags that indicate there may be something wrong. wow. I expected it but was still reeling a bit.
At this point in time I think we are going to wait to have him evaluated further. I am going to copy and paste an email I sent to friends for further explanation. sorry but I have not got the energy to type it all out again.
ok. the reason we will probably wait to have him evaluated is that they wonder if the fact that his speech is so delayed perhaps he "looks" worse than he really is. and perhaps some of the other more autistic behaviors are influenced by his lack of communication. does that make sense?
He would have to be evaluated by the university. You have to have an MD diagnose specifically PDD and probably the other conditions as well. I know, from speaking with the U already, that he would be seen by a developmental pediatrician and speech pathologist at the least. He would probably also be seen by a neurologist and potentially have a pysch eval as well.
there are specific therapies for autistic children. We will be working with some of the more troublesome developmental issues with the case worker. They are fine with me having him evaluated. they did not tell me not to. they just said that perhaps if we wait a bit then he may catch on to some of these things without needing the diagnosis. Obviously, as I am sure you can figure out, a diagnosis is a double edged sword. can be good...can be bad.
I think that it seems reasonable, for now, to allow him a couple more months to work on his speech and see where things go. They will reevaluate him in June to see where he is at and whether or not he would qualify for more help after turning three, since that is when EI ends and he would need to be turned over to the school system for early preschool or something of that sort. I will set up appts at the U for June as well. that way if he is not where he needs to be. or if I still have my concerns then we can get him in there to be evaluated.
I will be honest and tell you that for the most part I am ok with this, but part of me wants to whisk him away immediately and get a DX. part of me worries that I am doing him more harm by not getting him right in to get him evaluated....but that part of me is about as big as the part of me that worries about a dx following him around.
If he is on the spectrum he is obviously very high functioning thing is though that he could possibly eventually function high enough to barely register the spectrum if that makes any sense. I had, up until recently, only shared my concerns with Brad. and no one else. not even my mom. because I wondered if perhaps I was over thinking things. but I have had concerns for a few months now. if I see any of his symptoms or behaviors seeming to become worse or more pronounced I will also be getting him in earlier.
again...sorry for just copying and pasting but I am just too tired to try to type it again.
I am keeping a log of odd behaviors and other troubling stuff. I think I will also start trying to get little videos when I can of the things that worry me.
I am hoping that with the SLP and the case worker helping me out we can start to see some improvements even without an immediate diagnosis.
We will also begin feeding him a gluten free diet, which means we are all going GF since Josey is already.
ok....off to play with the littles. I will update my own blog later once the kids are in bed.
March 4, 2010
ahhh...my children
this post is from a previous blog, posted yesterday(March3,2010)
more on that in another March 4 post to come
I am a mom therefore I worry. or something like that.
I love my children. all three of them. they are the joy and the frustration of my days. They are my job.
Josey will be starting Kindergarten next fall. I am not sure why I use capital letters on Kindergarten except that it feels like that…it feels all proper and important. And big. Really really big. It has been a fast 5 years. She is doing well. Loving preschool and the friends she makes there. I just got a reminder call from the University where she had her cranio surgery at 4 months old and it is time for a re-check. in the earlier days I was calling to schedule these appts. and this time I was a little surprised. She is doing so well that some days you can almost forget she ever had her skull reconstructed so young. Almost…quite a bit happened around that time and although she is healed and well I can seldom talk about the surgery without crying. Not all out sobbing or anything. Just tears of a mom who feels incredibly lucky to have come through something like that with her kiddo intact and healthy. Sometimes I wonder if all that oxygen her brain was exposed to did something to it…like accelerate growth. She is smarter than I am I think on some days.
Lucey…techinically our second born since she was the first twin out of the gate. She is only a minute older than her brother but I am fairly certain that will be a detail she will not let him forget as they get older. She is talking all.the.time. these days. She ask about things. Lets us know when she “toots” or “poops”(for the most part). She loves to play with her big sister. She still sleeps with a paci, known as “paa-ie”, but knows when she gets up she needs to hand it over. Lucey eats just about anything and everything. No exaggeration…no lie. She is an awesome eater. She loves our boxer Oscar and lays with him while he is sleeping. The cat is also intriguing to her, she loves the sounds he makes when she pulls his tail. *small chuckle* We are working on teaching nice touches.
Brady…my youngest and only boy. ahh Brady. I was so scared to have a little boy. I did not think I would know what to do with him. I am here to tell you that little guy came out holding my heart in his hands. I love my girls but there is just something different about a boy and a mom. He is all over this house these days. He is active and moving. He LOVES cars. LOVES them. The movie, the toys…anything with wheels. He has a couple larger ones that he leans on and just pushes all over the house. Full of energy and love.
It is him I am worried about right now. It is Brady that consumes my thoughts and fears right now. He is not talking. Please understand when I say not talking I mean it literally. I don’t mean that he is hard to understand or that he is not talking as much as other kids. I don’t mean that he does not want to talk and so is choosing to be silent or that he gets everything handed to him so he does not have to talk. He really does not seem to be able to form words.
I called Early Intervention in our area 2 weeks ago. We met with them for the first time last Tuesday, Feb 23. The case worker was very nice and spent about an hour and a half here that morning. She did some developmental tests with him to see where he was at, she did say she would score him another time as well to make sure to get a more complete view of him. He scored very low in communication skills; at 27 months he scored at a 16 month level. Have you any idea how hard that is? To hear that your child is almost a year behind where he should be. He was behind in all other areas as well. He basically scored between 16 and 20 months.
A speech language pathologist, SLP, is coming this Friday, March 5, to meet with us and evaluate him as well. Where we go from there I am not real sure. She also bringing a test that will alert us to any red flags of autism spectrum disorders, ASD. again…kind of scary. I will blog more about my own thoughts on my other blog.
I am eager to meet with these professionals and move on to whatever the next steps are. I am so happy to have Brad to walk this with me. He is a wonderful person to lean on. I am grateful to be able to check things with him as well and watch him watching Brady. I know that whatever comes of all this we can walk this together. We always have been able to walk these tough roads together.
Well…smells like I need to get back to work. The girls have been playing for a little bit after getting up from nap and I believe that Lucey has made a lovely package for me in her diaper…oh the joys.
more on that in another March 4 post to come
I am a mom therefore I worry. or something like that.
I love my children. all three of them. they are the joy and the frustration of my days. They are my job.
Josey will be starting Kindergarten next fall. I am not sure why I use capital letters on Kindergarten except that it feels like that…it feels all proper and important. And big. Really really big. It has been a fast 5 years. She is doing well. Loving preschool and the friends she makes there. I just got a reminder call from the University where she had her cranio surgery at 4 months old and it is time for a re-check. in the earlier days I was calling to schedule these appts. and this time I was a little surprised. She is doing so well that some days you can almost forget she ever had her skull reconstructed so young. Almost…quite a bit happened around that time and although she is healed and well I can seldom talk about the surgery without crying. Not all out sobbing or anything. Just tears of a mom who feels incredibly lucky to have come through something like that with her kiddo intact and healthy. Sometimes I wonder if all that oxygen her brain was exposed to did something to it…like accelerate growth. She is smarter than I am I think on some days.
Lucey…techinically our second born since she was the first twin out of the gate. She is only a minute older than her brother but I am fairly certain that will be a detail she will not let him forget as they get older. She is talking all.the.time. these days. She ask about things. Lets us know when she “toots” or “poops”(for the most part). She loves to play with her big sister. She still sleeps with a paci, known as “paa-ie”, but knows when she gets up she needs to hand it over. Lucey eats just about anything and everything. No exaggeration…no lie. She is an awesome eater. She loves our boxer Oscar and lays with him while he is sleeping. The cat is also intriguing to her, she loves the sounds he makes when she pulls his tail. *small chuckle* We are working on teaching nice touches.
Brady…my youngest and only boy. ahh Brady. I was so scared to have a little boy. I did not think I would know what to do with him. I am here to tell you that little guy came out holding my heart in his hands. I love my girls but there is just something different about a boy and a mom. He is all over this house these days. He is active and moving. He LOVES cars. LOVES them. The movie, the toys…anything with wheels. He has a couple larger ones that he leans on and just pushes all over the house. Full of energy and love.
It is him I am worried about right now. It is Brady that consumes my thoughts and fears right now. He is not talking. Please understand when I say not talking I mean it literally. I don’t mean that he is hard to understand or that he is not talking as much as other kids. I don’t mean that he does not want to talk and so is choosing to be silent or that he gets everything handed to him so he does not have to talk. He really does not seem to be able to form words.
I called Early Intervention in our area 2 weeks ago. We met with them for the first time last Tuesday, Feb 23. The case worker was very nice and spent about an hour and a half here that morning. She did some developmental tests with him to see where he was at, she did say she would score him another time as well to make sure to get a more complete view of him. He scored very low in communication skills; at 27 months he scored at a 16 month level. Have you any idea how hard that is? To hear that your child is almost a year behind where he should be. He was behind in all other areas as well. He basically scored between 16 and 20 months.
A speech language pathologist, SLP, is coming this Friday, March 5, to meet with us and evaluate him as well. Where we go from there I am not real sure. She also bringing a test that will alert us to any red flags of autism spectrum disorders, ASD. again…kind of scary. I will blog more about my own thoughts on my other blog.
I am eager to meet with these professionals and move on to whatever the next steps are. I am so happy to have Brad to walk this with me. He is a wonderful person to lean on. I am grateful to be able to check things with him as well and watch him watching Brady. I know that whatever comes of all this we can walk this together. We always have been able to walk these tough roads together.
Well…smells like I need to get back to work. The girls have been playing for a little bit after getting up from nap and I believe that Lucey has made a lovely package for me in her diaper…oh the joys.
Subscribe to:
Posts (Atom)